Xadago – Safinamide – Im Dreaming Horror Films – progress diary

Xadago – https://www.bloomberg.com/press-releases/2019-07-10/valeo-pharma-announces-the-canadian-launch-of-onstryv-safinamide-tablets-for-the-treatment-of-parkinson-s-disease

5/2/2020 Fell asleep into blisful sleep ay 7pm. Had wanted to wait till after 10pm when I take my Madopar PBS overnight tablet.

Disgusted to wake at only 10.30pm thinking it must be at least 3am. Got up had belated meal but not hungry. Got a sudden fancy for seafood. Seafood salad last night and lunch, trout filets for tea ut couldnt be bothered preparing salad. Only ate a little bit.

Restless legs clamping and letting go in thighs and buttocks. still ha

vent taken 10pm madopar. very thirst. Will go take it now. 12pm. Bladder holding better but not passing much urine. Urine dark. (Remember this is just a diary record as it happens and cannot at this stage be attributed to one particular med because my dose of Sofril /Sifrol was cut out completely. That seems like a logical thought. Hopeful.)

Right now what I want to document is my dreams over the past hour, in which I was the instigator of several full-colour bizarre murders involving lift shafts and fire, severed limbs, the long wait as the lifts slowly ascended or descended, and standing beside black-painted, Victorian-style steel railings on a sandstone step watching grisly murders unfold and coming towards me. Fortunately the details are starting to fade. In some I had a silent male accomplice who seemed in tune with me. Now I abhor any horror or zombie movies so where is this from.

My current underlying feeling at the moment has gone from hopeless despar growing over the past week. Sunday night was worst, to a volcano lool of mild anger. I am still very resentful of the two friends who let me down last Friday, when I had gone out of my way to make both of them feel better and had made a real effort to clean and tiny (things were already done by the time my cleaner came for her 1-1/2 hours, then I didnt have a proper rest in the terrible heat but prepared my promised pizza dough and ingredients then Ros next door couldnt be bothered and said no, she wasnt coming in and no, she didnt want some bringing any in, as I usually do in. Then when I texted Janet to see if she was coming (having made a fuss about wanting to visit for days but would bring her own diet meal) she blithely rang and said her daughter and grandson had suddenly arrived, and no they didnt want to come for pizza. In fact, she added unapologetically, she had completely forgotten in the excitement. Which all made me look pretty dumb in front of my new neighbour who had been invited to meet both of Ros and Janet. This neighbour cant eat pizza.

At my age, I have noticed, everybody is gluten fre, lactose free, or sugar free, so it is best to let them bring their own.

Just bad a hot flush, which may be the Madpar kicking in. I want to go back to sleep, but not to dream.Nightmares, often violent, are common to people with Parkies.. Perhaps this is why I tend to get back to sleep as dawn is coming.

It has only been in the past four days that I have had any restful sleep at all,despite the intense heat. Being closed in for days with the aircon gking nearly 24/7 to take out the humidity is enough to send anybody daft.

I must note the flashing light in my eyes. Its both eyes so from the brain. And my visiion is worse since the change of meds. Need to go back to sleep. Thinking of fields of daisies to replace raw leg of lamb I see on a wooden table in my mind. Just needed to document in case I have a phsychotic episode. These mind-altering drugs always do my head in at first. Feeling better now.

4.23am Awake and very sore dspite taking 2 paracetamol alomg with madopar pbs, does it to me every time. Hard to type. Must get up and do stretching to unclench eveeything. Aargh.

Dlont Grieve for Mee

Be at peace for me

for I am at peace

I’ll go when I am ready

I’ll hurt no more

To go on

is to crumble

to not see

to stumble

to not be free

How can I soar

now I no longer fly

my wings arent clipped

Theyre broken

I dont hear birds

or children’s voices

I no longer laugh

for nothing is funny

or fun

absolutely nothing is fun.

I have gone to fly

A free spirit




But here I am

I am through you

in you

around you

I am the breeze

that just

kised your cheek.

Eùnice C English

February 2012

Update on Nigel and Effie

Well gang, Nigel and Effie have been such a help around the house since they came in out of the extreme heat just before Xmas, that they have accepted the invitation to stay indoors, where they have settled in nicely.

They welcome all visitors very kindly,, tend to the indoor plants, especially fussy Georgiana. Lady Georgiana Dracaena’s partner is Lord Gordon Dracaena, Esq [Gordon for short, neverGordie]. 😉who will only drink springwater or rainwater, and there has been precious little rainwater around.

So thank goodness they leave me tiny notes at the bottom of my shopping list to remind me to buy bottled spring water. A little goes a long way with the plants. Too much and tgey complain about wet fet for days🍄🍄

Nigel and Effie have taken little Praying Pauline under their wing, even though, technically, she ismuch older than them, having come from my Grandma in Lancashire to my Mum in Scotland, then on to me to come to Australia when she became an orphan. Aaw. Pauline says she plans to move in with Isabelle or Emily, once my sight gets so bad I might dust her off the shelf. Pauline may look fragile, but she is pretty tough.

Speaking of dusting, Effie is a great help with that, getting into the corners. Nigel sees off any pesky spoydas, or beasties.

It is not all hard work. They like watching the telly with me, though apart from ‘Gardeners World’ and ‘Escape to the Country’ we all agree there is not much worth watching.

Also, now that the Little Angels and Tiny Santas have departed till November, (that sounds close already), the rowdy parties have stopped. Of course they were really only a tiny tinkling sound without my hearing aids, so the neighbours never knew!

But I hear them giggling and singing with the other statues some evenings.It is all very harmonious, and of course they are free to come and go into the garden at any time.

They have suggested we might like to put a water feature in their empty space outside under the window, but we are wondering whether there would be enough sun there to solar power it. We all agree that watching a nice waterfall would be a nice change.

I did nearly make a faux pas two weeks ago, when I was offered a soon-to-be homeless half life-size Venus de Milo statue for the opposite garden, but Effie was quite shocked, and Nigel pointed out that parking a half-naked white statue in full view of Frank, who is 86, might upset Jenny, and would certainly have Naughty Norman, 93, driving off the path on his mobility scooter, and Norman is dangerous enough as is.

So, to avoid ‘lowerng the tone’ with a bit of culture, I had to decline. Besides, when I had texted my LSS (long suffering son) for help with transport, a curt text came back saying, “I am not available”. Point taken.

Hot Humid and Horrid

From today’s Newcastle Herald

Ibe been awake since 4am, but it has been raining all night so after 41C degree heat, and no relief overnight, the first rain yesterday turned promptly to steam, and it was unbearable outside! I havent been out since Thursday, since I no longer drive, and even the thought of waiting outside for a taxi (no parking in front of mine) was too much. It will pass. I tell myself people in Singapore live like this but you adjust over time. We just keep going from one extreme to the other. It is 80% humidity it says, because it is raining. Maybe if the forecast is right for the next few days we may get enough rain for a reprieve from our water restrictions, with the four-last-minute bathrom shower. We have had it easy for too long! My thoughts go to the inland drought –affected towns that have really run out of water, and are trucking it in. Having been Outback, I still cant comprehend how bad it is to live like that. But then there is Ethiopia. How blessed I am.