She Really Did It!

Just as I was writing the follow-up to my friend Naomi Allen’s headshave event, the news announced that raging bushfires had reached the little town where she and her family lives! I nearly died with shock. I knew she hadn’t been well that morning.

‘The boys were very scared’ was a bit of an understatement when I was able to contact her later.

I have known Naomi since she was six, and her Mother is one of my best friends.

I had already been worried about her Mum’s safety the day before when yet another fierce bushfire was being fought in her area along the coast.

Now her daughter had to flee and drive for safety from the encroaching bushfire with three children aged five years and under!

25 fire trucks arrived in the little country town on the New England Highway while the inferno was being watched live on television.

Meanwhile Naomi was driving her precious boys to safety in the opposite direction.

Naomi and four-year old Braxton recently featured in the Newcastle Herald story here after she had promised Braxton she would cut off her hair to make him feel better about his baldness condition, alopecia areata universealis details of alopecia which occurred following a severe virus. Currently the diagnosis is life-long hair loss.

A situation at pre-school had broken Braxton’s heart, and told him he was different. Now Mum was going to shave off her hair so he would not feel alone. “Goodonyer Mum”!

The haircut on 30th October not only made the little boy so happy, “He keeps touching it”

Naomi says, but it also helped raise awareness about Alopecia Areata.

Big brother, Lincoln, helped hairdresser, Stacy, with the head shave – with relish!

Lincoln turns Barber!

Nay had decided to make the head shave into a fundraiser to help a charity that makes wigs for children with Braxton’s condition. They were thrilled by one of the largest single financial donations (nearly $,800) they had ever received.

They will also put Naomi’s former long hair to good use.

So much love

(You can still donate here)



https://myparkinsonsdiary.blog/2019/09/28/hair-raising-tale/

https://www.newcastleherald.com.au/story/6445452/a-mothers-selfless-love-for-four-year-old-son/?src=rss&utm_email=9980537b30

Musical Bathroom Chairs

I’m hating this old person thing, buying all these aids, such as a deep sided dinner plate, but I do love my new bathroom chair in the shower.

Simple but effective
Adjustable hand- held or fixed hose works well with he shower seat
Add a clear acrylic long-handled back brush (hanging from tap). Plus a strong double-length grab rail on the wall for safety

Quite expensive through my Occupational Therapist, but there now case of those split- second blackouts I have now and then. My bathroom is tiny but easy-clean low maintenance. No room to swing a cat (pets not allowed). This is the second bathroom chair. The first nearly shot me on to the floor like a slippery dip when wet! Extremely dangerous. The company dont usually accept the return of used goods (I had only tried it once), but they decided the risk of accident and repercussions was not worth it and rang to offer an alternative.

Actually the tall and burly youngish man and I ended up having a good laugh as we tried squeezing nto spaces while we passed each other several times trying to adjust the seat height. I hope the neighbours weren’t listening, now I recall our dialogue relating to the chair, ending with “Yes that feels great. Thank you.”

So I can really recommend a shower chair. It is just lovely to take the weight off and let lovely warm water cascade gently over to ease the muscles while washing with lovely scented shower gel. How I miss no longer being able to use a bath, but this comes close.

A Fridge That Does Your Shopping

You know that moment when you are in the supermarket aisle and you know there is something missing in the fridge that you were going to replace, but can’t remember?

Or you wonder which vegetables you wanted and you wish you could just ring your fridge and ask it to tell you?

Well now you can!

My son was telling me about the latest fridge that you can look up on your smartphone app which connects with a camera inside your fridge and you can actually stand in the supermarket and see what you’ll need. I kid-you-not!

Not only that it’s has a screen on the door that you can use to bring up a recipe to cook, or call up children’s school program and see whether you should be planning something. The the options appear endless because it links online as a cmputer.

You you can be playing music, or watching a movie, catching the quiz on tv or possiblySkyping family overseas so they can watch you cook.

It even keps food cold and fresh, or frozen! Who would have thought it!

I thought my son must be kidding so I looked it up on Google and here it is. In JB Hifi at Kotara, right on my doorstep. This I have got to try.

He then started to tell me about a fridge that you could change around so that one side could be a freezer when you had a lot of frozen items or you could make that the chilling ing side instead and the other side could be the freezer, just by fkickng a switch, but my head just wouldn’t go there.

I used to think having a fridge that made ice cubes in the door was the Bees knees but this refrigerator they call a Family Hub takes the biscuit – and the ice cream, pardon the pantry pun. Oh crumbs.

PS. The style is called a French Door Fridge, and I was going to say ‘but I bet it doesnt speak French, ha ha’, but then I thought that with Google translate it probably does. Bloomin’ eck.

Forgotten whats in your fridge? Look on your smartphone! Click pic for more details on website

Take the Grandchildren!

Baby Tasmanian devil. Photo courtesy of website. Click on pic to visit

Australia has many unique animals. Our family used to love visiting the Reptile Park, especially Eric the huge crocodile. You dont need to worry about the snakes there. They help provide anti-venom that goes out to save lives. heck them, and everything from cute koalas and huge hairy spider to baby Tasmanian Devils out at the Australian Reptile Park. Link above.

Balloons and Tristan the Twister

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How lovely must it be to have a Daddy who is a magician! Daisy and Willow could tell you.

I came across these photos taken years ago when I first met my magic young friend, Tristan the Twiister, or Tristan Stothard. He was entertaining at The Lockeeper during lunch, blowing and twisting bright balloons into all sorts of recognisable shapes, shown in the slideshow.

When my craft shed was erected in the corner of the garden, one of the neighbours said it was like Downton Abbey and needed a Grand Opening. So Eunton Abbey began! But that is another story.

click to visit his website
Tristan and his balloon Union Jack

I sent an invite for help to Tristan who arrived with his lovely daughter, Daisy. He went to work and made me a balloon Union Jack to hang across my stable door.

Then he made grande chapeaus (my French is tres terrible) for my garden party guests. All wonderfully pretentious!

Despite all the merriment, the magician seemed lonely.

Soon after my event Tristan met his new wife and soulmate, Emma,, who totally encourages him in all this wonderful madness, and, as if by magic, along came Willow.

Tristan also made some wedding flowers from balloons to accompany a framed poem I was giving the couple. They were a great hit and lasted longer than real flowers!

Soon after I came back to my family in Australia. In meeting my very kind magician friend at a low point of my life, following the passing within months of my Mum and Dad, those balloons lifted my spirits and left brightness iin my mind that stays in one corner forever.

Tristann is on FacebookLink to facebook page

An Easy and Fun (Free) App for Photos and Videos

I have reached the stage where I am up to my ears (new headphones) in technology but I have found a (previously recommended somewhere) little free app at Google Play Store by Movavi.com that starts by showing you how to edit bits of videos or add photos, then it is fairly easy to follow the icons to add sound you choose from your files to compile.

My first effort took literally minutes. I needed to send some music I had recorded during our lake cruise to the musician. I did that next, including video. Very basic but job done. I have since deleted that version. Good practice though.

You could happily spend hours putting together family photos with some transitions, titles, music.

The free Movavi Video Editor trial let me put together video with photos and animation and I was able to add a pice of music. Once saved it seems I cant go back but for a free basic user-friendly programme I am very pleased. With the programme if not my trial instant video that I have included below.

Upgrade in Australia by Paypal is approx $39.95 US dollars plus optional insurance (approx $9.95) Videos can be edited and uploaded straight to YouTube though the uploading can take a while but looks after itself.

As a way of keeping distant family and friends in touch visually it is very handy. Just dont try to get too clever at first. I tried to move too much around and got confused but it was easy to start over.

As soon as my new computer is delivered and set up (oh dear it has Windows 10), I am going to invest in the upgraded Movavi Video Editor to combine my old photos and video clips. Even with limited vision, by running my new HP computer through the big tv screen I can link together my many older photos into more interesting viewing.

click on pic to go to Movavi for more info
My very basic first attempt. Photos only. Click on pic to go to Youtube

Really Helpful and Positive PD Video

https://www.davisphinneyfoundation.org/video/the-pd-you-dont-see/I have found these the least daunting and most helpful sources of information regarding Parkinsons and living with it. Families and caregivers may recognise some concerns they may have, and be able to accept that is why we are behaving this way. Perhaps then the family doctor or specialist can be consulted.Some PD vids scare the hell out of me. I can only hope for breakthroughs before I get to those stages. These videos by Joanne Hamilton, PhD, ABPP-CN of Advanced Neurobehavioral Health of Southern California in Poway, CA, however are really good and available on Youtube. They have make a big difference to my outlook.