She Really Did It!

Just as I was writing the follow-up to my friend Naomi Allen’s headshave event, the news announced that raging bushfires had reached the little town where she and her family lives! I nearly died with shock. I knew she hadn’t been well that morning.

‘The boys were very scared’ was a bit of an understatement when I was able to contact her later.

I have known Naomi since she was six, and her Mother is one of my best friends.

I had already been worried about her Mum’s safety the day before when yet another fierce bushfire was being fought in her area along the coast.

Now her daughter had to flee and drive for safety from the encroaching bushfire with three children aged five years and under!

25 fire trucks arrived in the little country town on the New England Highway while the inferno was being watched live on television.

Meanwhile Naomi was driving her precious boys to safety in the opposite direction.

Naomi and four-year old Braxton recently featured in the Newcastle Herald story here after she had promised Braxton she would cut off her hair to make him feel better about his baldness condition, alopecia areata universealis details of alopecia which occurred following a severe virus. Currently the diagnosis is life-long hair loss.

A situation at pre-school had broken Braxton’s heart, and told him he was different. Now Mum was going to shave off her hair so he would not feel alone. “Goodonyer Mum”!

The haircut on 30th October not only made the little boy so happy, “He keeps touching it”

Naomi says, but it also helped raise awareness about Alopecia Areata.

Big brother, Lincoln, helped hairdresser, Stacy, with the head shave – with relish!

Lincoln turns Barber!

Nay had decided to make the head shave into a fundraiser to help a charity that makes wigs for children with Braxton’s condition. They were thrilled by one of the largest single financial donations (nearly $,800) they had ever received.

They will also put Naomi’s former long hair to good use.

So much love

(You can still donate here)



https://myparkinsonsdiary.blog/2019/09/28/hair-raising-tale/

https://www.newcastleherald.com.au/story/6445452/a-mothers-selfless-love-for-four-year-old-son/?src=rss&utm_email=9980537b30

Musical Bathroom Chairs

I’m hating this old person thing, buying all these aids, such as a deep sided dinner plate, but I do love my new bathroom chair in the shower.

Simple but effective
Adjustable hand- held or fixed hose works well with he shower seat
Add a clear acrylic long-handled back brush (hanging from tap). Plus a strong double-length grab rail on the wall for safety

Quite expensive through my Occupational Therapist, but there now case of those split- second blackouts I have now and then. My bathroom is tiny but easy-clean low maintenance. No room to swing a cat (pets not allowed). This is the second bathroom chair. The first nearly shot me on to the floor like a slippery dip when wet! Extremely dangerous. The company dont usually accept the return of used goods (I had only tried it once), but they decided the risk of accident and repercussions was not worth it and rang to offer an alternative.

Actually the tall and burly youngish man and I ended up having a good laugh as we tried squeezing nto spaces while we passed each other several times trying to adjust the seat height. I hope the neighbours weren’t listening, now I recall our dialogue relating to the chair, ending with “Yes that feels great. Thank you.”

So I can really recommend a shower chair. It is just lovely to take the weight off and let lovely warm water cascade gently over to ease the muscles while washing with lovely scented shower gel. How I miss no longer being able to use a bath, but this comes close.

A Helpful Medical Fund NIB


I dont know about you, but dealing with these robot pretend chat customer relations people online “does me ‘ead in” but once you get past it can be marginally better than hanging on the phone forever.

Having said that, my medical fund staff and service at NIB Medical Fund are always great, but it was after hours by the time Ihought about the information I needed from them.

The chat robot gave in immediately on the typed chat site, it could not ollow my simple query, and offered to ‘put me through to a human’ (sic). ‘ok hurry up’ I typed teresly, not holding out much hope. I am used to dealing with Telstra.

And voila, there was Nicholas. Now Nicholas was cool. He was right on it. He put me at ease, had obviously read the file in that few seconds, and even worked outside the script.

Nicholas is World Leader in online problem sorting. Fortunarely he didnt have to understand my Scottish accent, since I type in Australian English (apparently there is a difference).

I even asked him a trick question, “since my quote for my 2 teeth on a denture is $1400, I have $760 left with you, you pay $60%, so what will you actually give me?”

This is where Telstra on the phone would have hung abrutly, pretending a line break from Indonesia. Not NIB, not Nicholas.

Without even starting with ‘Duh!’ back he came in a flash. No not a real flash, my tablet is working fine.

This was great news. I felt so relieved. Only $640 to pay. So while I had my new best friend there I asked him why they had rejected my refund for my blood pressure machine, in the faint hope Nicholas could work miracles.

Other customer relations personnel would have sneeringly pointed out that if I had bothered to read their email (I read as far as ‘rejected’), there was light at the end of the tunnel. I had it in writing. Instead he swiftly inserted the relevant print, in clear-to-see print. Impressive.

So he checked the name of my provider. They were approved. Told me how to go about resolving the issue.

I was getting euphoric! I had paid $90 at the chemist for a blood pressure machine. I could claim 60% after all. You do the maths. I was ready to go and lie down, mentally and physically, but Nicholas was firing on all cylinders.

While I was slow-typing he was checking my file and mentioned that I didnt have a third party to deal with things in an emergency on file. So we promptly dealt with that as my long-suffering and highly trustworthy elder son has reluctantly accepted power of attorney.

It was time to wrap things up, and not only had I been treated with dignity, which believe me at our age is rare, I was about to get a refund I wasnt expecting, once I ring the chemist to ask for an official receipt. We will see how that goes. Time to say goodbye. But the elation was going to my head:

Nicholas replied that he liked my sense of humour. What a lovely person. He asked if there was anything else he could help me with. ‘No thank you, I love you, Bye for now’, and I disconnected before he could type ‘DAFT OLD BAT! I had such a good evening after that.

I confess to getting anxious these days when dealing with things that before would not have phased me. I used to organise festivals and functions for Heaven’s sake!

It is partly a Parkinsons thing, but young servers in shops can give that shoulder lift as if gearing for trouble that instantly sends my mind blank and I do end up meeting their expectations, to my inner annoyance.

So hats off to Nicholas and NIB for great customer relations.


Update: Heard from NIB today. The receipt my chemist emailed me for the blood pressure machine was promptly uploaded and today I heard back that $60 is on its way into my bank account. I also copied this item into the NIB facebook page and had a message back to say they would follow up with Nick to let him know his work was appreciated.

An Unfurry Bear

I have this special teddy Its not a furry teddy, its specially made in the Shetland Isles as a collectable and is made of special machine-nitted knitted lace. Cost about $130.

I got my grandaughters little matching ones made out of recycled knitted Fair Isle jumpers to go with mine, but they are too old for teddies now.

Anyway I was sitting looking at it yesterday and thought: Actually, that bear has no hair,

it is a bare bear,

with no hair, and it is

beautiful’!

Then I wondered how Baxton, my four-year old friend with alopecia areata, who got boken-hearted recently when a little girl at preschool told him to go home because he didnt belong, would relate to a bare bear with no hair.

Braxton has a different take on life. Would it mean anything?Would it empower him to have this bear onside?

Busta isnt soft and cuddly. He isnt even particularly friendly!

He is just Busta, the bare bear,

who sits on his own,

by the side of my chair.

He doesnt need friends,

cos he just doesnt care,

but when the toys need him,

they know he’ll be there.

Busta, the knitted bear from Fair Isle in. Scotland, home of my ancestors.

So I am expecting a visit from Braxton and his two brothers soon. If Busta resonates with Braxton, then Busta will be much happier with him, as long as he is kept well away from two sticky brothers lol.


Have you made your donation to the wigs for Alopecia charity yet? We only have till 30th October when Braxton’s Mum, Naomi, has her head shaved for this charity. Please go now, no matter here in the world you are,

to the donate page by clicking on this photo.

Many thanks

A Fridge That Does Your Shopping

You know that moment when you are in the supermarket aisle and you know there is something missing in the fridge that you were going to replace, but can’t remember?

Or you wonder which vegetables you wanted and you wish you could just ring your fridge and ask it to tell you?

Well now you can!

My son was telling me about the latest fridge that you can look up on your smartphone app which connects with a camera inside your fridge and you can actually stand in the supermarket and see what you’ll need. I kid-you-not!

Not only that it’s has a screen on the door that you can use to bring up a recipe to cook, or call up children’s school program and see whether you should be planning something. The the options appear endless because it links online as a cmputer.

You you can be playing music, or watching a movie, catching the quiz on tv or possiblySkyping family overseas so they can watch you cook.

It even keps food cold and fresh, or frozen! Who would have thought it!

I thought my son must be kidding so I looked it up on Google and here it is. In JB Hifi at Kotara, right on my doorstep. This I have got to try.

He then started to tell me about a fridge that you could change around so that one side could be a freezer when you had a lot of frozen items or you could make that the chilling ing side instead and the other side could be the freezer, just by fkickng a switch, but my head just wouldn’t go there.

I used to think having a fridge that made ice cubes in the door was the Bees knees but this refrigerator they call a Family Hub takes the biscuit – and the ice cream, pardon the pantry pun. Oh crumbs.

PS. The style is called a French Door Fridge, and I was going to say ‘but I bet it doesnt speak French, ha ha’, but then I thought that with Google translate it probably does. Bloomin’ eck.

Forgotten whats in your fridge? Look on your smartphone! Click pic for more details on website

Take the Grandchildren!

Baby Tasmanian devil. Photo courtesy of website. Click on pic to visit

Australia has many unique animals. Our family used to love visiting the Reptile Park, especially Eric the huge crocodile. You dont need to worry about the snakes there. They help provide anti-venom that goes out to save lives. heck them, and everything from cute koalas and huge hairy spider to baby Tasmanian Devils out at the Australian Reptile Park. Link above.

Balloons and Tristan the Twister

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How lovely must it be to have a Daddy who is a magician! Daisy and Willow could tell you.

I came across these photos taken years ago when I first met my magic young friend, Tristan the Twiister, or Tristan Stothard. He was entertaining at The Lockeeper during lunch, blowing and twisting bright balloons into all sorts of recognisable shapes, shown in the slideshow.

When my craft shed was erected in the corner of the garden, one of the neighbours said it was like Downton Abbey and needed a Grand Opening. So Eunton Abbey began! But that is another story.

click to visit his website
Tristan and his balloon Union Jack

I sent an invite for help to Tristan who arrived with his lovely daughter, Daisy. He went to work and made me a balloon Union Jack to hang across my stable door.

Then he made grande chapeaus (my French is tres terrible) for my garden party guests. All wonderfully pretentious!

Despite all the merriment, the magician seemed lonely.

Soon after my event Tristan met his new wife and soulmate, Emma,, who totally encourages him in all this wonderful madness, and, as if by magic, along came Willow.

Tristan also made some wedding flowers from balloons to accompany a framed poem I was giving the couple. They were a great hit and lasted longer than real flowers!

Soon after I came back to my family in Australia. In meeting my very kind magician friend at a low point of my life, following the passing within months of my Mum and Dad, those balloons lifted my spirits and left brightness iin my mind that stays in one corner forever.

Tristann is on FacebookLink to facebook page