Woke up full of Good Intentions but very down in inside after not going to sleep till after 3 a.m. but sleeping in. It was midday by the time I got ready and just getting into my jeans took ages to get the legs the right way around and just getting my legs in. IContinue reading “When Good Intentions Don’t = Energy”
A Good Fibro Overview click the link. This is why my neurologist had difficulty with a complete PD diagnosis, and called mine Parkinsons Plus (although I have seen that attributed to other symptoms). I have had fibromyalgia for over 20 years. Best described by having been hit by a bus or having toothache all over,Continue reading “Fibromyalgia or PD?”
When you decide to use the çhat service rather than going through the offshore operator service to get your tablet fixed (not). The following is a record of your online chat. General Info Chat start time Sat, ***** 06:03:34 GMT Chat end time Sat, ***** 07:02:51 GMT Duration (actual chatting time) 00:59:16 Operator Erickson ChatContinue reading “What a Waste of an Hour”
Entrepreneurs-with-disabilities-are-putting-their-startups-to-the-test. Jacob, in the attached story loves playing board games so much that he thinks he might try taking his skills out there in the region to provide a service for homebound people. What caught my attention is he may be able to get some games up on to a screen so visually impaired peopleContinue reading “Found a Possible Scrabble Buddy”
The staring and stiffness are mine but I need to exercise more. My mind says “Let’s do it!” but the body says “….Nah….”
There have been too many of these bad days in a row so something must be done but it just goes to show that you should never give up because just when I was about to moan about everything going wrong since I’ve got up it started getting better. I am having to wind downContinue reading “Today sucks (or it Did) May 3rd 2019”
Whatever you do don’t leave your compulsory vote until the last minute on election day because the blooming voting slip it is nearly half a toilet roll lol long! I had no idea there were so many political parties in the country. I had to choose six and number them. I was tempted to giveContinue reading “I have (Postal) Voted”
Parrots Feeding But got more care services organised. Vision clearing as day progressed. Ankle pain and swelling going down. Woke up with it. Have to wait another couple of days for bloods results.
Happy, happy, happy! First day of Parkinson’s art class in Hamilton. Back to basics but trying to find a way to do it now with my distorted vision and it went quite well so I am very heartened and looking forward to next week. The two hours is just a little bit long and gettingContinue reading “Parkinson’s Art class”
Featuring an egret and black swans (near the end). The nearest we have had to a cool autumn day this year. Been the hottest Anzac Day on record last week. 2019
I’ve Bought a Chandelier! Sometimes, when things I’m not going to plan you just have to do something crazy to brighten life up and this is my gesture at the moment. To be honest I have nowhere to hang it inside because I have low ceilings with those horrible ceiling fixtures that are wired inContinue reading “I’ve Bought a Chandelier!”
Not a good idea to go give an armful of blood on the morning after a flu injection. Ñext time must remember to drink lots of water during fastinģ to keep the blood fluid. She took 5 large vials and it wouldnt flow! That is how the rest of me felt too. Got a taxiContinue reading “Blood Tests”
Had my annual flu injection today at the doctor’s suggestion, despite being on antibiotics which are nothing to do with it . Blood tests tomorrow so fasting from now or 12 hours and if any more abdominal pain I have to go to the hospital and get it seen to. That is what caused allContinue reading “FLU JAB”
I Used to love my magazines, particularly home decorating magazines and country style magazines. Every month I would buy at least one or two and save them all until the time came when I could no longer read the small print or see a photograph correctly. I was very sad to have to give themContinue reading “Magazines for Macular Degeneration”
Which in government terms means I have one leg practically hanging off, or am at deaths door OR – there is a general election in the next few weeks. Well they have my vote. This means funding is now available for a few hours more support through my agency, Uniting. Take note though I haveContinue reading “Im a Level Four!”
Had completely forgotten I had taken these photographs while in Worksop Notts U.K. The real meerkats are much cuter than those on the tv adverts. These are at the Butterfly Farm and little zoo, which my friends and I visited quite often. They also have a great cafe. Nice memories.
Once again I’ve let diverticulitis creep up on me and of course the doctor has been closed for Easter so I waiting for the surgery to open to book in for some antibiotics. I was going so well earlier in the week but it only needs me to do too much bending over in theContinue reading “Health Issues”
Had to take them from inside the car as I had seized up but I had set a goal to go to Glendale while Angela was visiting, she was determined we were going to the pancake place. How could I argue. I needed a rest before I went and felt quite ill,but hoped getting outContinue reading “Sunset at Belmont”
https://www.theherald.com.au/story/6069078/ferry-use-rises-as-commuters-bypass-traffic-and-parking-blues/?src=rss&utm_term=0_4465202af3-3cb3876d15-66403101&utm_campaign=3cb3876d15-NEWSLETTER_EDITORS_PICK_DAILY&utm_source=The+Newcastle+Herald&utm_medium=email&utm_email=9980537b30 It’s also great fun to take the short round trip over the water to look up the river, out to the harbour mouth and back to the city skyline. Sometimes we were beetling across the river as a huge tanker was entering the harbour and heading for the channel. That got quite thrilling oneContinue reading “Stockton ferry use on the rise as commuters bypass stresses of traffic, parking and fuel costs | Newcastle Herald”
S something has happened that required me to change my password hope everything is ok
https://www.theherald.com.au/story/6011193/painted-rocks-hobby-going-wild-in-the-hunter/?cs=24 Speers Point is not far away and these round and flat painted rocks might be easy to spot. It would get me out and walking.
And I wasnt looking in the mirror. Not sure if you will get the joke, unless you watched Crocodile Dundee. I was looking at my electric toothbrush…
https://www.theherald.com.au/story/6021229/hundreds-of-singles-looking-to-mingle/ My short piece about Matt and Ainslie’s wedding is directly under this and I was surprised and pleased to see it show up in my Google news feed! The lovely photo was taken by Ainslie’s niece, Aimee Coupe. I finished a second version of the lovely wedding story and emailed it to Country StyleContinue reading “My Godaughter’s Wedding”
https://www.facebook.com/groups/121453141890505/ Such lovely people sharing their gardens. My own gardening is becoming very limited but each pot brings its own interest and pleasure. I love visiting all these fb friends gardens so lovingly tended and shared.
Parts 1 and 2 of how operations helped but it was them talking about their symptoms and lifestyle that really helped. In my case I have just gone inside the tunnel- and there is an oncoming train
ttps://www.theherald.com.au/story/6021229/hundreds-of-singles-looking-to-mingle/?cs=12 Ive got a fourth piece iñ the Newcastle Herald Topics column and am having a lot of fun with a dialogue I have running with Damon, the Editor, by email. He says to keep sendiñg him my ‘musings’, most of which are not for publication. NFP. I am finding it’s hugely liberating to beContinue reading “Hark The Herald”
A rollater walker with a window box. Every home should have one! Being doing laps of Bunnings (B&Q) with my helper. Good excercise. Only went in for a $10 African violet and a cup of coffee, as you do. $90 later………. I reeeeeeely needed 2 terracotta pots. They have stopped doing my pale green plasticContinue reading “Rollater With a Window Box!”
Got the jitters really again when typing so the madopar must have bottomed out. I still have some leeway to reach the top level but it is disappointing. Typing becomes a real pain and correcting takes even longer lol. Dictating this. Off to the courthouse with my helper this morning to see about witnessing myContinue reading “Power of Attorney”
Typing is becoming very difficult and jittery again and voice dictation is not working well either. I’m home just in time for the storm to hit and hopefully it will cool everything down since I’ve been to my Parkinson’s dance class and it was so hot even with the air conditioner on. Some of theContinue reading “Sore and Sorry”
Wait for it, got a lot to tell But wait for it, there is a lot to tell! In the meantime check out this fun cello version of the Lonely Goatherd on our lovely olive farm in the Hunter Valleyhttps://www.lonelygoatolives.com.au/
It appears we Aussies have a fixation with trees that resemble the human form. It reminded me of the ‘bikini tree’ at Belford that was world-renowned, still features in Wikipedia, and lives on in many childhood memories as the I Spy moment on a boring stretch of road that was the New England Highway fromContinue reading “The Bikini Tree at Belford”
Love sitting outside in the afternoon watching the various parrots magpies and other birds flitting backwards and forwards having their feeding time. Those bright colours are not photoshopped.
You gotta know when to hold ’em Know when to Fold ’em Know when to walk away And know when to run… Kenny Rogers – The Gambler Too right Kenny! Case in point: putting up the hem on my new super-comfy harem pants. Once a piece of cake for a former home dressmaker and craftsperson.Continue reading “Know When To Quit”
After Todays Exercise Class my friend suggested this L.oL
From Hunter local Land Services: Not a happy hopper! This is the face of a whopping cane toad, found at Swansea. Thank you to all our local community who have joined the hunt for cane toads in our region this weekend, after one toad was caught in Eleebana last week. We don’t want cane toadsContinue reading “Evil Cane Toads in Next Suburb!”
http://chateaudebourneau.com/ My dream home! My French/Norman ancestry responds instantly to this! What a wonderful couple to put so much work into this. Going to get the dvd set of that other chateau renovation Escape to The Chateau. Loved that programme series.
Perhaps its more a British thing, collecting blue and white pottery? I leave so much behind when returned to UK. My plates nearly all feature old house scenes. No great value, except to me.
No longer have the fondue pan, but this worked.
They call them USB sticks now, those little finger- shaped gadgets that stick into the side of your computer or laptop and hold loads of Gigglebites (sic) of information. They were originally sold as Memory Sticks. If only I could stick one in my ear and replace all of the information I have forgotten. LastContinue reading “Lost My Memory- Stick”
Home and horizontal with knee on ice pack and back plugged into TENS machine. Had finally got to sleep about 6:45am with alarm set for 9:45 and was ready and waiting – even wearing earrings when Melitta arrived to take me shopping. Didn’t feel a bit like going but that’s not the point. Wrenched myContinue reading “Later that day”
Voice dictated needs correcting later. It says 5:30 a.m. and things are a bit weird here. I’m still wide awake have been messing about on my A5 tablet. I hold it close to my face because of my vision. Radiation too close to the brain?Haven’t been able to sleep and keep picking it up againContinue reading “Ipad affecting my brain?”
‘ The hill by Tillicoutry where my parents’ joint ashes were scattered. They can now sit on the seat there and eternally enjoy Dad’s beloved view together. ‘Every day in every way I am getting better and better’ was always mine. Still beats the reverse even though that seems the way at present. SoContinue reading “Updating My Mantra.”
Got talking to my taxi driver, as you do, en route from Belmont to the John Hunter. He was originally from up the Hunter Valley, same as me, and we got to discussing when the only McDonald’s in the region was at Broadmeadow and people would drive their kids 87kms just to go there! OfContinue reading “Memories of Macdonalds”
Found an interesting blog of a new follower called Noelle and thought thìs was especially good for us Parkinsons people as we struggle to keep our identity. There is also an absolutely stunning photo of blue toadstools/mushrooms and some really amazing photos. Are they yours, Noelle? From the blog of https://wp.me/saFWnP-galore
Not something you can do along the main street but these movement hints really work! Especially the unlocking ones, which can be done anywhere. Needs must. Well worth a .try. Alexander Tressor himself lives with PD so he knows what works. Some of his other videos are set outside which is a nice change fromContinue reading “Watch “Walk more normally with Parkinson’s – 4 simple ways” on YouTube”
My heart says ‘zumba dancing’, my sensible mind says ‘Parkinson’s Dance Class’, but the body says ‘Are you insane? Get back into bed!’ At age 72 there is so much pressure to be doing fitness classes or long walks or something very active no matter what your condition is. Lots of exercise is good forContinue reading “Zumba, or Parkinsons dance class?”
Actually an old fashioned fondue pan with candle power underneath is a great thing to have during a power cut for making a cup of tea. B but first I will get the bad stuff out of the way in case any of you Parkies want to compare notes. I am at this stage where anyContinue reading “Found a Fondue Set!”
Near Worksop, Nottinghamshire but think it is Derbyshire. Spirits of Prehistoric cave dwellers. Bones of Oryx, dinosaurs, history. Love this place. Taken about three years ago.
Photographed at Wyee nursery last year. Love at first sight but couldnt have got it on the bus! Approx $600. Ah well.
Thought I wasn’t going to be putting much on here any more but must give due credit to Uniting who are looking after me through my care plan. I have just had the Assessor 4 occupational therapy etcetera come to update my records and see what is needed to complete my care plan, and IContinue reading “Good Care from my Carers”
I’ve managed to document a different phase of my life for the record. Don’t know if it will be of any use to anyone else but I have got to the point where I don’t really want to put what is wrong out there and to focus on getting more active for the sake ofContinue reading “Winding down the blog.”
ust got home at 1 p.m. after my Parkinson’s exercise class. I would not have gone if we were not making the segments of the global video and it was hard work, just walking out to the car to go there. My legs especially the thighs were so stiff and it is so hot todayContinue reading “exercise is killing me”
Well it’s Monday and Saturday I thought I was going to hospital ,yesterday I just lay down all day to rest the bones as they say and these bones needed resting then today I got up at 7:30 all systems go. Put 3 lots of washing on then in the dryer to save stretching atContinue reading “Up and away”
Been on a increased dose those of Madopar 4/4 days now I’ve been feeling really ill for the past two but I still managed to do my blog lying down, but yesterday was awful and I thought I would have to go to hospital. I was lying down I’m so weak and when I wokeContinue reading “Madopar Update”
One of my fuzzy days and a weird train of thought came to mind. Ì may have mentioned it beefore?Somewhere someone is sitting frantically trying to come up with a new descriptive name for this season’s slightly-adjusted shade of cream paint. It has sold in buckets for a generation in Wilkinsons as good ol’ magnolia,Continue reading “Cream Paint”
Everybody loves my Aspire Vogue lightweight rollator but it has a disappointing flaw. Such a simple thing but the ring connecting the lever to the lifting handle in the seat for folding what I call ‘My Harley’ (with due respect to Harley Davidson) for putting in a vehicle has pulled apart or the second time.Continue reading “Rollater Woes”
Above quoted from Kathy Lette in her book Nip and Tuck. She also uses my favourite ‘mind over matter’ quote: “If you dont mind it doesnt matter”… Just saying. Update: Comment on the above received from my friend Angela:As Harvard Professor Emerita Laurel Thatcher Ulrich once said, “Well-behaved women seldom make history”… You go, girl!Continue reading “Im Immaturing With Age”
From an email received today: With the support of the community, the NSW Government has agreed to fund our NSW library, ensuring anyone who is blind or has low vision or with a print disability will continue to have access to this service. If you were one of the many individuals who lobbied decision makersContinue reading “From Vision Australia”
It is now autumn they tell me, but our theme for the day was summer and although it is the beginning of autumn the temperature outside was around 38 degrees C. However, Marion and team still made us do our exercises before we were a allowed to have our combined buffet! We finished with anContinue reading “Fun Finalè to Excercise Course”
Please read the newspaper article (link below) before reading my personal story – which is for friends, carers and other Parkinsons people: https://www.smh.com.au/politics/federal/aged-care-s-new-front-line-our-own-homes-20190305-p511u2.html There is a lot of truth in this. We need an Ombudsman or agency to checķ with on quotes. My son could get me a clothes drier cheaply through his store butContinue reading “My Take on :Aged care’s new front line: our own homes”
click here A new large study presented at the American Neurological Association Annual Meeting has found a strong connection between cholesterol-lowering medications and Parkinson’s disease. Contradicting previous claims that statins are protective against PD. Well today has proved to me that statins are really bad for me. This morning I posted how well I feltContinue reading “Statins and PD – BAD”
Well good morning friends! Feeling great! Didn’t take the long acting tablet till 11:30 at night ithat should have been at bedtime but anyway after messing about lying down with my tablet iPad dinghy I had something to eat and went off to sleep comfortably at about 3 a.m. as has become my habit. WokeContinue reading “PADOMAR PBS UPDATE DAY 2”
…as we used to call it in the family. We also ate Beef Strongenuff. Delicious! But tonight’s catastrophe is not a laughing matter. I nearly forgot to take my new night time Màdopar till about 11:30 pm. Swung open the kitchen cabinet and a bottle of vitamins threw itself (didnt know its own strength –Continue reading “Katastroff”
5.10aam. Took the first tablet for slow release madopar at 10:30 last night I went to sleep without needing audiobook about 1:30 am. Rudely awoken from deep sleep by severe abdominal cramp that passed suddenly but just after was bitten either by a mosquito or one of those little spiders that sometimes get into theContinue reading “Madopar HBS 100mg First Night”
Meet Digger, who lives with with John and Hazel in England. He and Effie live 12,000 miles apart. The attraction by email was instant, but will they ever meet? Remind me to tell you about Nigel to the Gnome.
This is very interèsting, especially as here in Australia I am currently paying out hundreds of dollars to 1. My neurologist yesterday 2. My dentist on Monday 3. My eye specialist for consult and injection on Tuesday Plus a gap of $20 to my physio. I get part of thoserefunded through my private medical insurance.,Continue reading “We all know that Americans pay more for healthcare…MetNews”
Letter to the Editor: Hi Damon, a lot a lot of us Seniors hang out at McDonald’s to meet up with friends for coffee and cake, or worse. We read the free newspapers. During school hours of course when it is quieter. We have done it since we brought our kids there and even thoughContinue reading “Grumble Grumble – end of an era?”
My cute gnomette!
A spatula ! Actually this slightly curved wooden spatula is great in the bathroom for applying cream to difficult areas, such as my left hip, or the sides of my feet. It feels cool and and smooth and can massage gently in. No, I don’t use this one for stir fries! With softer lotions orContinue reading “What do you call an unmarried kitchen utensil?”
Lost over an hours work on this yesterday don’t know how because it was all there with photos when I went to answer the door. Nowhere to be seen and you haven’t really missed anything. I’m exhausted tonight but saw the neurologist today and he is hopeful that adding another madopar around late evening plusContinue reading “Here’s How it Goes”
https://eunisworld2014.wordpress.com/pilgrims-and-churches-in-nottinghamshire/ Some of my photos from 2014 on a day trip from Worksop
More nice photos from my time in England https://eunisworld2014.wordpress.com/easton-walled-garden-lincolnshire-history-in-the-re-making/
https://eunisworld2014.wordpress.com/ornate-with-a-capital-o-for-opulence/ Some nice photos from my older blog
https://wp.me/p4dDgk-L It doesnt seem long since I was a carer. Just over 10 ears since I went to England. Four years in May since I came back. I found this excerpt from the journal I kept for the first six months on my 2014 blog. Im only now able to back and read it, andContinue reading “The accordion and other old things.”
It is rest time, and Ive finally worked out how to log in to folow others (Mac Greene I mean you!), and caught up on Mac’s Parkinson’s blog. It is helpful to learn how others are going and what Mac, and his wife, are doing to cope. Ive been a carer, first for my partnerContinue reading “Healing and Carers”
Just took this from my bed. Love it ! Think you I will put this in my calendar file for the 2020 version. The current one I made for my special people who have made my life happier and easier – (a surprising number I found out as I kept happily ordering reprints) has metContinue reading “Here Comes the Sun La La 7.30am”
Wide awake at 5:30 having had enough sleep in bits and pieces and yes up with nothing hurting sure have had a fight with myself not to go back to bed but I will only toss and turn and get sore. Major breakthrough up and coffee made door open to allow fresh air and andContinue reading “Easily Sidetracked!”
We all knew it would happen and after a good start at 8 a.m. stripping off the quilt cover,putting on the washing, putting clothes away from yesterday’s washing , taking the garbage and recycling along to the bin, gone on up to the mailbox on the top level and down the three levels of theContinue reading “As Expected”
Like me Lee Holmes had fibromyalgia which made her very tired, sick and sore. She was finally diagnosed with Crohn’s disease and after much research has come up with healthy eating that contains a lot of anti-inflammatory ingredients such as turmeric. It all made sense and I have come home not with her latest bookContinue reading “Lee Holmes Healthy Diet”
Haven’t done a poyum in ages no lovelorn laments Rants and cross rages Came up with some thoughts Just a moment ago Then I blinked and forgot… ………. maybe it’s good that lately life has not given me much to complain aboutor be driven perhaps it is good to be sitting content thinking I mustContinue reading “Poyetry (sic)”
Actually I lie about shopping as my care providers messed up and nearly forgot to send someone to take me to the Audio Clinic so we were running half an hour late by the time they had sent someone who fortunately I had help from before and liked. Her van type car was murder onContinue reading “Shopped Till I Dropped”
My friend Angela is always coming up with good ideas to make my life easier. I already mentioned the use of non-slip rubber matting for opening bottles and jars which works brilliantly but now I have also found it is great for catching the tablets from my blister pack or Webster pack as they callContinue reading “Helpful hint for meds”
cjheck out Jimi Hendrix here Watching a program oñ 60’s musician Jimi Hendrix on SBS and remembering going to his very loud live concert in Chesterfield, UK. He played his electric guitar with his teeth, behind his head and in ways never seen before. Much of it was wasted because the audience screaming was totallyContinue reading “My Jimi Hendrix Experience”
Having the world’s best milkshake in Coles Shopping Centre, having caught my friendly local taxi down and sorted out my meds with Adam at Blooms Chemist. From now my tablets will be delivered weekly in a bubble, or Webster pack with each group of tablets ready in itslittle window for each day, morning noon andContinue reading “Having such a Good Morning.”
https://www.ncbi.nlm.nih.gov/m/pubmed/17534943/ Having had a malignant mole ( Hutchinson Freckle) years back and subsequent near misses I am concerned that the sudden growth of a raised mole on my hip that never sees sunlight may be limked to levadopa and my increased dose. It is over the area where I have almost constant abdominal pain (diverticulitis).Continue reading “New Mole”
I haven’t talked about my weekly visits to Rankin Park Hospital for assessment and mentoring but I am still feeling the benefit of the course, which was the precursor to the excercise classes I am booked to begin in January. The clinic seems to focus on living with PD, as opposed to dying fròm..and livingContinue reading “The Parkinson’s Disease Clinic”