Good story from The HeraldThis was my pharmacy when I lived on The Hill and also for the special cocaine eye drops I had to get made up with the prescription from my eye specialist (great stuff!) for my macular degeneration eye injections back then. He always was nice and I loved his umbrellas hangingContinue reading “My Favourite Pharmacist is retiring”
I am so sick of pain Pain of the heart Pain of the mind Pain of the body That pain which makes forgetfulness so hard to achieve With movement comes oblivion To pain of the mind Distractions are everywhere if one can get to them Pain of the heart can 0only be eased with timeContinue reading “PAIN – my poem”
https://tomenglisheswar.wordpress.com This is the start, but it isnt up and running yet. Just tweaking the layout takes time, before I add my accumulated data but this should lead you to my current introduction Main Page and Menu as supplied y WordPress. Nope it doesnt go to my About paged right now, I have to rememberContinue reading “Tom English’s War”
I dont know about you, but dealing with these robot pretend chat customer relations people online “does me ‘ead in” but once you get past it can be marginally better than hanging on the phone forever. Having said that, my medical fund staff and service at NIB Medical Fund are always great, but it wasContinue reading “A Helpful Medical Fund NIB”
Ive got a bit weird with my gardening, because I find the things I am doing are using the kind of stretching movements that are recommended for us with Parkies. So I have been moving things about. Hope this slideshow works for you. I keep taking photos, not only as a record of changes, butContinue reading “Garden Update”
Planting these is not for the vision impaired or less dexterous. Trust me! These little kits came free with my Woolworths online shopping order yesterday. 1 per $30 (it was a small order this time). Since we dont keep (or even ncourage lol – no I’m joking) small children in our village, my inner childContinue reading “Gardening is Kids Play”
Just heard from Harris Farms, the fresh food barns people: IMPERFECT PICKS is our seasonal range of fruit and vegetables that might not look perfect from the outside, but are as perfect as ever on the inside. IMPERFECT PICKS helps reduce the astonishing statistic that 25% of farmers crops currently never leave the farm gateContinue reading “Good Sense With Veg and Fruit”
I have this special teddy Its not a furry teddy, its specially made in the Shetland Isles as a collectable and is made of special machine-nitted knitted lace. Cost about $130. I got my grandaughters little matching ones made out of recycled knitted Fair Isle jumpers to go with mine, but they are too oldContinue reading “An Unfurry Bear”
Just when I am weaning off chocolate with sugar -free lollies Harris Farms puts this recipe on facebook! But fruit is healthy, right? Also, I am pretty sure mango is one of those foods that is good for Parkinsons. Speaking of which, it doesn’t contain jelly so wont end up all over the table haContinue reading “A Mere Trifle”
A week since my meds were changed and what an awful week it was but this is day 2 off Xadine and I slept from 2.30am to 7.30am, got up, stripped the bed and had the washing on the line and was taking a break on the settee with the heat massage blanket soothing myContinue reading “Pizza Night”
Woke up from nightmare with the highest blood pressure ever 156/97 and it kept saying that so I thought the machine was broken. I made my appointment yesterday for the doctor just to discuss this medication and when I ask the nurse to check and it was still 152/92. I have been across to McDonald’sContinue reading “Xadago -Day 6 Wed Morning”
Including overspending in the Reject Shop! You know, that bargain shop you pop into because it is the only place to find those microfiber cleaning cloths with the mesh on the other side for scrubbing and only $2. then $41 later you come out with a pile of stuff that you didn’t know you reallyContinue reading “Day 7 – without Data to-Back to Abnormal”
Dictated outside suuurgery while waiting for taxi. It doesnt cope with my Scottish accent. Apologies but cant face correcting it right now. See if you can make some sene of it!. Woke up with the highest blood pressure ever 156/97 and it kept saying that so I thought the machine was broken. I made myContinue reading “Xadago Day 6 wed afternoon – going off med”
One important thing I should mention. Lack of anger restraint. Ive just got myself into bother on fb! First I actually trolled (first time I think), one of these females who seem to spend their lives having their lips plumped, then sitting in front of a camera being inane. It was one of those unsolicitedContinue reading “Still Day 5 Tues – feeling very ill”
Although I avoid too much knowledge about what may come – because it may not – it seems I am reasonably well up on things and doing well when you look at how I was three ears ago. Even the doc in UK had noticed my ‘frozen face and mentioned Parkies 6 years ago. WhenContinue reading “Xadago – Day 5”
Started off very sluggish and opted out of shopping. It poured which is great. Got outside and Potted up two new geraniums under shelter then a tomato plant plus my pink spiky cutting. The olive trees have flowers. Used my walker for support and afety. Gardening is always very painful but cant top entirely! HadContinue reading “Xadago – Day 4”
Friday:First day had my carer worried. Very weak. Got blood pressure monitor through chemist. Friend came to visit and had livened up enough to make pastry for meat and potato pie by 6.30pm. Watched new dvd with visitor. Usual arthritis discomfort while seated. Still usual sleep pattern: wake abt 2am-4am.. Go back to sleep withContinue reading “Xadago Day 3”
Please donate here I have known this little boy’s amazing mother since she was wheeling her dolls around aged six! She and her partner Nikki, have three gorgeous and lively little boys. Despite a broken hand, Nay still took them camping two weks ago and they had the best time. There is nothing this coupleContinue reading “My Little Superhero and His Mum”
Must get new tweezers lol I’ve stolen and cropped this so-cute photo taken by my good friend Karen Ractcliffe of the Ractcliffe Review web page because it is so much fun! See Karen’s pictorial of their day out at the Tanglin Lodge Alpaca Centre.See more alpacas in Karen’s story here
Note: haven’t edited the typos at this stage: Safinamide – Common side effects of Xadago include: abnormal movements (dyskinesia), falls, nausea, insomnia, dizziness upon standing, anxiety, cough, indigestion, hallucinations Common Side Effects of Xadago (Safinamide Tablets Well this could be interesting, and I will definitely be wearing my medicalarm pendant today and not goiñg anywhere.Continue reading “well Here Goes ‐ Xadago”
Well this should be interesting. I am waiting for the delivery of my new medication Webster pack – that little square piece of cardboard with lots of bubbles in it containing tablets for all times of the day. I was about to write about being on the next stage of Parkinson’s which is a bitContinue reading “Waiting”
This should take you to the page
This is a copy of a text I have just sent my long-suffering son: This could be interesting the neurologist has changed my tablets and the side effects can be hallucinations and palpitations so I wonder if you will notice the difference haha. Just an early warning as I will start them on my birthday.Continue reading “New medications”
My eldest son and I have our birthdays a week apart and this year it was his 50th though he didn’t want a fuss. We like to have a lunch together between the two birthdays if he is working on the day. We couldn’t decide where we should go locally that wouldn’t be too crowdedContinue reading “Birthday Outing”
Check out Medisafe – pill reminder and medication management. Get it now http://bit.ly/getmdsf I have been trying the free version of this for a week now and it has got me back on track. A bell tone rings on time, then every few minutes till I click that I have taken that dose, plus itContinue reading “Medisafe helps me take my meds on time. Try it out now!”
I will start before the beginning. Yesterday I went to the doctor because of all that has been happening and she said it all related to Parkinson’s which was not good as I seem to be regressing . She ďiď a few checks and found my blood pressure was very low 90/something insteadof 120-140/70-80 asContinue reading “Now that was Wierd”
My lovely friend has gone. This photo was the last time we met up. 2013 at Beĺmònt 16’s on the water. Sue moved to the South Coast ìn search òf a better life. I moved back to UK to help my elderly parents, and was gone 8 years. We kept in touch through mutual friendsContinue reading “For Gareth from Sue”
Will have to send a notice to head office of our village saying “If It aint broke dont fix it.” I mentioned my sadness at our little loyal weekly garden team bbeing ‘given the boot’ (fired) or Wellington in this case for what reason I don’t know because they did get things done quietly. oContinue reading “When modernisation fails”
When even dictation goes awry and has the Parkinsoons jitters! Will start something new elsewhere: Great excitement not but it is the monthly birthday bash up at the hall and I am one of the participants this mmonthso will have to go and suffer through the quiz to get to my to get to myContinue reading “Village Life continued”
Feeling worse. Maybe backache isnt just arthritis ince helper had backache and was coming down with something and mine has been sore since then above the usual arthritis and I havent been myself all week. My shoulders ache ab y neck but my hip pain wont let me rest. I will drink plenty of waterContinue reading “Saturday Afternoon”
Delightful and inspirational This short ideo of David Owen age 91 getting a surprise chance to sing to a theatre audience had me in happy tears and inspired to have a karioke fternoon at least!
The things you do when you cant sleep! My app for my photos came up with this combinatiion of 4 fun poses taken by the lake after the ooptometrist and shopping with my helper. Nte to self: wear eye makeup.
Got my sense of humour back!
https://www.michaeljfox.org/news/depression-anxiety Trying the new frames. Very similar to old frames Now my Parkinsons meds are losing their potency both depresion and anxiety are creeping in but I went to my eye test on my own today. My vision is deteriorating again so I ordered new spectacles. $550 though only one lense can be seen through.Continue reading “Depression and Anxiety”
For the record: Sorry but things are not feeling too good at the moment and I feel like I am the energizer bunny advertisement whose battery keeps running down. The latest developments, that others with Parkinsons have mentioned too, is that the tendons in my feet are being pulled shorter and my toes are turningContinue reading “Health Update”
watch video Obviously left her hearing aid at home ànd was waiting for Englebert to come on. When I went to Motley Crew in Sydney at least I wore black jeans and a black satin bomber jacket. This lady is wearing beige for Heaven’s sake! Talk about letting the side down.
Link to Michael .McIntyre – comedian So true. My appointment is at 12. I turned up in time for my appointment at noon yesterday o to find the optometrist knew nothing about it. But I had received a text saying I was due to make an appointment, so I rang the number on the textContinue reading “Eyetest With Michael McIntire”
As water restrictions begin and the hotter weather comes, my African daisy seeds have sprouted – success at last! The chandelier has survived the wild weekend winds, and I am trying the camera on the new tablet. Contrasting leaves make the plants easier to see.
Just been watching Kevin Bridges (Scottish comedian) on Youtube. Love getting back to Scottish humour, since I grew up in Ayr, on the west coast of Scotland. Kev was talking about people translating him from Scottish into English, something I still encounter here in Australia. He was hilarious, especially telling about learning to speak SpanishContinue reading “Thspeaking Thpanish”
Letter to The .Editor: Hi Damon, if and when the construction of the proposed new Ikea store on the new Boolaroo site comes to fruition, will the new building arrive in one giant flat pack with a sheet of instructions and an allen key? Regards, Eunice. Child’s play: the latest self-assembly hall table from KMartContinue reading “Tiny House Living – Nearly”
You know that moment when you are in the supermarket aisle and you know there is something missing in the fridge that you were going to replace, but can’t remember? Or you wonder which vegetables you wanted and you wish you could just ring your fridge and ask it to tell you? Well now youContinue reading “A Fridge That Does Your Shopping”
Posted on Facebook, this photo reminded ne of a dear friend: Had a friend who always stuck her diamond earrings into her mattress under her pillow before she went to sleep every night. Then she stayed at a friend’s place. The friend had one of those water beds. Need I say more?
Developers proposal Hello Damon, I’ve said it before but does this council have massive shares in a concrete company to be so insistent on spreading it across Newcastle? The new plans for the former bus depot by the Foreshore are nothing less than awful. What used to be a lovely, happy, green area for childrenContinue reading “Tilting at Windmills – letter to newspaper”
Had such a lovely lunch out with my helper Gail, meeting up with Sheryl who made my fabulous handbag. It is so great to meet up with a fellow artist, and the food was divine as usual. The shop has so many great things too. Must go back for the large gnome! Link to WhichContinue reading “Lunch at the Garden Centre”
Still being edited…Emirates info for disabled passengers irstly I book early making sure I get an aisle seat near the back and the rare one with the lift-up arm so I can slide in and out. I also have arthritis in my spine so dont have to arcb up and over a fixed chair arm.Continue reading “Flying Alone Long Haul with Parkinsons and Low Vision”
This really interests me because of my mediçal history. Via the Ñewcastĺe (Aus) Parkinsons Assn Newsletter: Published In Medical News Today onTuesday 13 August 2019 By Tim Newman Fact checked by Isabel Godfrey) Researchers already knew that men and postmenopausal women have a higher risk of developing Parkinson’s disease than premenopausal women. Now, a recentContinue reading “Parkinsons and Oestroģen – News”
._. Ihave accidentally. downloaded. a keyboard cha t lume Nyhanliving into- text- Not working is it. will give tgat a niss even if lafely I keep mssing the correct letters on the keyboard as ooposed to stuttering.?more later… Well that was embarrassing. What it says above is that I tried a new keyboard _ byContinue reading “toHand writing”
Well done to Vision Australia for getting changes made to mobility vehicles (like Norm’s) so that we vision-impaired can hear them coming. Acually, Norm’s makes a whining-whoosing sound (not quite breaking the siund barrier) but anything louder will drive me nuts as he whizzes past. Mý regular drivers have quickly learned not to ask “AnythingContinue reading “IT It is Real Cars I Dont See Coming”
https://en.m.wikipedia.org/wiki/Boudica They have started calling her by the new version, Boudica but to me she has always been Bodacea. Warrior Queen in Ancient Britain. That is the Wikipedia link to her story. It describes her as: …It is agreed that Boudica was of royaldescent. Cassius Dio describes her as tall, with tawny hair hanging downContinue reading “Still in Warrior Princess Mode – Update”
Ros and Eunice going past our 90 year-old neighbours Norm and John!
Oops, that sounds a bit too religious, bbut bless you all from whateveer you believe in, neaning may good thinngs happen to you and yours- all 85+ of you.xxx Firstly, I am not going to correct my Parkinsons jitters this time as it makes everything take three tiimes as long. Hope that is ok asContinue reading “Morning To ‘My Followers’!”
You know what I am talking about! I go before I go In case I need to go when I am going where I am going I dont want to be going before I get there. And that look of concentration on my face whilè sitting waiting contemplating anywhere is me in focus in myContinue reading “For My Parkies Pals”
Nobody messes with this mother. Letter to village management : Dear ****, today the unsociable and dictatorial behaviour of John **** came to a head when he caused a confrontation in the driveway to the garages by unit 25, ***** Village, in front of my carer, who was attempting to drop me, my walker, andContinue reading “Village Life – A Stiff Letter”
https://www.kidspot.com.au/health/family-health/real-life/why-you-should-never-buy-peanut-butter-in-plastic-jars/news-story/ea64a36ddb6d3a80d8e7d423ef226f96 Oops, just finished mine in plastic pot
How lovely must it be to have a Daddy who is a magician! Daisy and Willow could tell you. I came across these photos taken years ago when I first met my magic young friend, Tristan the Twiister, or Tristan Stothard. He was entertaining at The Lockeeper during lunch, blowing and twisting bright balloons intoContinue reading “Balloons and Tristan the Twister”
From Facebook. Had to share.
I look like a chimpanzee! Not much left to go wrong any more. Had another filling this afternoon and my original dentist confirmed that the faceache is coming from what they call ‘dry socket’ from my tooth extraction. It should start easing off in the next few days. How do professional boxers live with allContinue reading “Smile For the Camera”
It keeps popping up on Facebook and Youtube and is a lot of healthy fun! Im starting to pick up the routine but my back will never cope. Have a go though! Here is some more about it https://10daily.com.au/news/tech/a190703jvkxg/what-is-the-git-up-challenge-taking-over-tiktok-right-now-20190703. Go to the second video down, then the Austin Police Dapt one. It is such aContinue reading “Viral Dance Craze – Git Up Challenge”
Weve just got a new movie channel called SBS World movies, and it is wonderful! I was a little disappointed at first as every time I switched on the movies were about dirt and poverty, situations I cannot change for the world, so I stopped watching, but last night a visually beautiful movie called ‘ThisContinue reading “Some Things Are Worth Stopping For”
It has been a very painful week especially with all the dental problems which seem to to set off the nerves in my gums etc. Today I had another xray and wednesday I go back to my usual dentist for fillings or extractions. Everything else went wrong too but life cant always be perfect. IveContinue reading “Rough Week”
Two years in the making and a work in progress. Coming into spring here so exciting times ahead, apart from the forecast water restrictions if we dont have a lot of rain soon. Ive put the video slideshow on Youtube to open quickly (may show an advert first) so please click on the picture andContinue reading “Watch “My Courtyard Garden” on YouTube”
He has stopped feeding them bread since he found out it is bad, but every day loads of lorikeets descend on Normie’s courtyard for afternoon tea which now consists of quality wild bird seed.
Works every time for me.Thank you Fantasy Van Gogh-style graphic from a photograph using Picas app.
Having a few days fighting off infection that has seen my jaw swell up once more who knows why . nobody knows whether it’s coming from my thyroid,glands or what and you have to do all the rounds to find out but I’m too tired. Went to the local dentist yesterday who is not myContinue reading “Oh woe”
Created with Photo Lab app #photolab Been experimenting while lying low with a very swollen jaw. I love how these colours have come out.
https://m.timesofindia.com/life-style/health-fitness/weight-loss/weight-loss-the-foolproof-ayurveda-guide-to-lose-weight-in-just-7-steps/amp_articleshow/70571851.cms Common sense really. My current bad habit is to eat late because I stay up till midnight. I will give this a go.
The original news story AI am very sad to read this, as I have Dr Eugene Hollenbach to thank for saving my sight, after my optometrist had failed to pick up a haemmorhage in my left eye due to macular degeneration. ” It is just old age” the young optometrist casually said. Then my visionContinue reading “Dr Eugene Hollenbach Saved My Sight – In Defence of a Good Man”
Going back to my ‘sports injury’ in my right hip, 4 weeks later I gave in and saw doc. A few prods and ‘does this hurt’ and bursitis is the diagnosis. Great, another one to the long list. I’m turning into mmy Dad. Im even getting the moustache! Mind you, he lived to 89 andContinue reading “Needles and Scans”
The computer arrived yesterday but after making a pasta sauce, kneading the dough for a pizza base, going for an afternoon walk and delivering the form I made for relaxation class to the hall, then making (a very successful) pizza which I invited my neighbour in to share, my arms were too weak to evenContinue reading “Got This Far”
I love it when I get feedback to my stories. Tonight my school friend from Primary School sent me a pic that he thought perfectly illustrates my story about my lentil soup. They say a picture tells a story and this one certainly does! It deserves a page on its own.
https://kirbiecravings.com/keto-lemon-mug-cake This takes minutes to make and there are lots of Keto recipes I heve discovered on here. I adapted the peanut butter mug cake to put on top of tinned pineapple to make an upside down ludding then topped with caramel syrup. Wicked but no longer keto I think.
I have reached the stage where I am up to my ears (new headphones) in technology but I have found a (previously recommended somewhere) little free app at Google Play Store by Movavi.com that starts by showing you how to edit bits of videos or add photos, then it is fairly easy to follow theContinue reading “An Easy and Fun (Free) App for Photos and Videos”
“Life Isnt always low- hanging fruit”, said the man on tv today. So true. In the case of my friend Gwen’s orange tree, the easy to reach low-hanging oranges were nice, but never as sweet as the higher fruit in full sun. The better fruit took more effort, and some danger, but the taste isContinue reading “A Wise Saying”
My Scottish friend, Morag, and I come from the same part of Ayrshire in Scotland, where we both have delatives. Not sure if we are related, but she looks like my lively wee sister! Morag is mad keen on karioke (as we spell it here), has all the equipment at home, and before I movedContinue reading “Euni and Morag do Abba (or The Two Ronnies!)”
https://www.davisphinneyfoundation.org/video/the-pd-you-dont-see/I have found these the least daunting and most helpful sources of information regarding Parkinsons and living with it. Families and caregivers may recognise some concerns they may have, and be able to accept that is why we are behaving this way. Perhaps then the family doctor or specialist can be consulted.Some PD vids scareContinue reading “Really Helpful and Positive PD Video”
…would do the same for me! My metal outdoor bench has had a makeover. It, and some cushions were my first purchases when I set up home back in Australia and I love it. 4 years and three homes later the sea air and storms had caused some rust. It has taken a few stagesContinue reading “If Only 3 Cans of Spray Paint…”
https://www.newcastleherald.com.au/story/6279812/dont-cough-on-me-you-disrespectful-woman/ My friend Jen was so angry she told me all about her experience so I wrote it out, checked it back with her then forwarded to Damon Cronshaw, my contact at the Newcastle Herald who can always be trusted to correctly and entertainingly put together a story. Besides his Topics column his bigger fact-basedContinue reading “Making a Stand on Germs”
“I forget you have Parkinsons” my helper said as I was struggling to get out of tthe car after our two hour outing. For a professional to say that was praise indeed, for I try hard to stay on top of it. We had set off for the little shopping centre at Jewells with theContinue reading “The Nicest Thing You Can Say”
Coloured vinyl records are back! I wonder where my blue coloured Elvis Presley ‘Blue’ LP is now? They think they invented them, these young ones! Actually I was just about to write about the rise in sales of new ‘old-style’ vinyl records in Australia- the big ones you play on a record deck – butContinue reading “Vinyl Record Sales Are Soaring”
‘Ive found a driver and that’s a start’… as the Beatles song goes. Been talking to Kym our new village manager who is keen to start some new activities, though it seems hard to drum up any excitement for anything out of the ordinary. Im putting fkyers in the mailboxes today for the relaxation group.Continue reading “Plunketty Plunk”
Do you prefer my photos in this format, or ooen on the page? Please comment below. I have just worked kut how it is done!
After a bad night and coming to the conclusion conclusion I must have cracked something in my hip and needed to go to hospital for an x-ray I considered asking my carer to take me to the nearby accident and emergency at Belmont but by the time she got here and I had had aContinue reading “Next Day”
When I tell you that I could not make it to the fridge just now you will know things are really serious. It all started as I was setting off for the car with my helper and my hip joint had got very stiff. I’ve been quite sore all week and wondering if the lucentisContinue reading “A sports Injury”
Monday 15th July. 12noon set off with my helper put a bit of fresh air and exercise. Not really feeling the cold is my problem. I can tell by my face that is cold but my body doesn’t feel itself getting chilled until it’s too late then it takes me ages to warm up. WeContinue reading “Snowing not far away”
Update:. The Queen was very pleased to hear about the tree planting inspired by, and now part of, her Commonwealth Canopy initiative. Recently she sent me a lovely letter in response to my sending her the story. It may not be the done thing to discuss it but I will say that I was soContinue reading “The Olive Tree Wedding Gift – Update”
Gosh! My blog has been viewed in 23 countries, including Qatar, Sweden, Kenya, India and the United States! Thank you for visiting. You are welcome to leave a comment, as long as you are nice about it! And to my 70+ followers, well you make getting up in the morning worthwhile. It makes me doContinue reading “23 Countries”
you look so beautiul and i admire you alot please be mine… Well, no, not only do I not know you, I really object to you putting this comment in a reply below a nice comment I made about the Queen on The Royal Family FB page. I doubt very much you are a NewContinue reading “I Have An Admirer – sort of.”
I did have a long-time crush on Imran Khan the cricketer but my lifetime love was James Stewart as a cowboy actor and in real life good husband and family man. So the man I go for (sorry went for) before I forgot what I went for haha is not à film star, but aContinue reading “My Perfect Man”
But hey, this is a selfie! Gotcha, eh Mandy? Have a fun day Everyone. x
There was a time when seeing a good-looking doctor could at least brighten the day but now all my doctors are either children or young females so that takes the shine off that. We are still trying to coordinate carer transport and medical appointments which nearly sent me round the twist this morning. First IContinue reading “Med Appts Are the New Hot Dates”
A really nice cruise around Lake Macquarie, NSW. Todays slideshow of our lunchtime cruise here Photos ny Karen Ractliffe here