My neighbour, Ros, loves my cooking, which makes all the chopping and mixing worthwhile. Her nervous condition affects her ability to cook at the moment. Her Mum often sends her meals around frequently but she is on her holidays. I only take her in meals when the mood takes me. It helps repay Ros forContinue reading “Success!”
Well after my rant I took the extra half tablet late yesterday Afternoon and made stir fry vegetables about an hour later. Took ages prepping all the veg that came with my order but all so fresh. I still felt like eating afterwards despite all the veg and got up in the night to eatContinue reading “Perseverance”
What is the point of taking medication that only makes my symptoms much worse? I have tried the higher dose of madopar only to feel like every nerve ending is raw and the pain in my neck and shoulders in the night was awful plus my left arm was cold as ice. How can doctorsContinue reading “No Good”
The weather cleared up and I tried the afternoon half a tablet as prescribed. My son picked me up and we headed for nearby Green Point for a walk in the fresh air. Windy and mild, plus walking with tthe rollator took all the pressure off and I felt strong. The lake is a veryContinue reading “Later in the Day”
Dont know if it is the meds and the protein problems but I am so tired and sleeping too much. I dont fancy many foods, and after eating only a few mouthfuls my throat seems to close and my stomach lurches. It is confusing to know what to do. Losing weight will be good butContinue reading “So Tired”
Back to half a tablet once a day, a better night,some blocks of deep sleep woken up by complicated dreams and jerking, but that’s ok. About the audio books: they take the brain focus away from the jerking and cringing muscles. By focusing on the words of the narrator I tune away from me thenContinue reading “Oh,thats Better”
This diary ìs a record, but because no-one likes a whinger I have not included many bad days. Mind you there have not been as many bad days these days lately – up till now. But I don’t know what to do after last – night my third night on increased madopar. It is knownContinue reading “Oh Dear”
I’m having difficulty gettng my head around the fact that protein messes with levodopa meds. I’ve just stepped up my meds as decreed by my Neurologist but my diet contains a lot of protein and after feeling good at the time of writing last evening good. Then I cooked 2 lamb cutlets and ushroommms followedContinue reading “Protein Problems”
Day 2 of the second increment of Madopar. Been out, did some grocery shopping at Coles, walked round Bunnings- good exercise. Treated Ros to lunch out in return for being driven. Legs not working too well by home time but secoñd .50 of 25mg tablet kicked in and working online lying down. No spasms orContinue reading “Upped the Meds”
OK OFFICER, I DUNNIT! may as well confess here and now.You will find me hunkered down at my place, doors and windows closed blinds down. Come and get me. You can tell my place by the dreadful putrifying smell, and the buzzing of a bludgeon of flowflies spiralling over my garden workbench. They look andContinue reading “Erm, about the Rotting Corpse”
…especially Australian Pension and you cant face the intended humiliation of the Centrelink office many miles away. Go online like they want to do. Ha! Here is the simplified version of how it is done:- Prepare supply of snacks and drinks but keep those away from keyboard. Apply sedation of choice and prepare for wifiContinue reading “When you need Proof of Income”
Another maintenance day! Two pain-free fillings by young James. So smooth I cant tell which were done, though the grinding and drilling were proof. I have adrenaline-free local anaesthetic which wears off in 20 mins so he has to work fast – and he does. Thank goodness for my NIB Private Medical Fund that coversContinue reading “Toothless Old Hag”
Suddenly got productive on the new meds but Im having trouble keeping my body up! Got to organise my potting corner to be higher as it really pulls me inside but here is Plan A. Bunnings have a hook on table that may hook on my fence for potting. Anyway Ive run out of space,Continue reading “Going Well”
Richard turned 49 last week, and I turn 72 next tuesday, all being well. We usually have a joint outing, which these days is best at a couple of hours though his car is comfy enough for travelling, and fairly easy to get in and out of. My 17 year-oĺd grandaughter came too, which wasContinue reading “Joint Birthday”
My Neurologist is adamant I try Parkinsons medication in addition to the antagonist Sofrill. My two attempts at Sinemet were too awful to ccontinue – intense muscle pain, loss of balance, feeling poisoned etc. that I gave up after a few days So this morning I began with Madopan – half a 125 tablet plusContinue reading “New Meds”
The past three days I havè felt better in myself, but the shakes and internal trembling have been worse. I cant bear feeling full of wobbly jelly. My eyes are flicking rapidly when I try to focus. Am now writing this in bed. Audio book time. Escape.
I haven’t talked about my weekly visits to Rankin Park Hospital for assessment and mentoring but I am still feeling the benefit of the course, which was the precursor to the excercise classes I am booked to begin in January. The clinic seems to focus on living with PD, as opposed to dying fròm..and livingContinue reading “The Parkinson’s Disease Clinic”
Annette has just been to cut my hair, ready fortomorrow’s family birthday outing. I go for ‘wash and wear’ these days. It is nice sitting out in the fresh a air gettng it done. Fresh air, fresh hair lol. ery pleased with the result.
Sitting in the sunshine waiting for my next person who is the occupational therapist from the Parkinson’s clinic. She is coming to measure up where my new safety rail will go in the shower. There’s nowhere to grab if I lose my balance, one of the things you have to be conscious of with Parkinson’s.Continue reading “Parkinsons Stuff”
A sudden jump in temperature to 31c ttoday.. Bit of a shock to the system but got in a short walk down and uphill, plus a chat to a neighbour. Neck and shoulder aching is becoming permanent.
Stopped off at the lake after two fillings at the dentist just around the corner there. The young dentist has the same surname and is one of the New Zealand contingent. Had a nice chat about heritage. Felt no pain but had the shakes badly. Must have been the local anaesthetic. Ok now. More onContinue reading “Through the Windscreen”
The Heartbreaker. Just ran up my wifi ģigglebytes watching The Heartbreaker on SBS on Demand. French. Subtitles. Comedy at its best but more British comedy style than French. Intriguing that the support actor as the very British fiance was the lovestruck best man in Love Actually. Boy does he steal the scene wearing only aContinue reading “Romance”
Dear Diary, got up at 8am determined to get my online groceries in transit. The usual struggle to dress after showering. Put washing on. It poured. Still pouring. Happy plants. Must give in and get a clothes drier. Right now the washing is on the airer outside under the canopy. Was determined to finish myContinue reading “Rain”
Just arrived from England, my new cotton dishmops. Perfect for Parkinsons users. Gets into my blender corners. One for dishes, one for surfaces, these mini mops allow more movement and pressure. Easier to grip than plastic too. They can be soaked in bleach to kill germs. Happy now.
Lying in bed trying to get motivated and checking out Facebook. Good Parkinson’s support group there. Also found a great YouTube clip of our local band Roy Dwain click here and the Roamers and there I am, slim and dark-haired, leaning on the group’s van. Age 15. Oh those were innocent days! Then I metContinue reading “Good Times”
Had a nearly nasty fall stepping back off the slope where I keep my spare plants. I grabbed the bush on the way down and felt the leaves coming off in my hand but it doubled me over and stopped me hitting the concrete. Aĺl that ice skating as a child stepped in with balanceContinue reading “Falls and Folds”
Very happy with my new specs that dont go dark in the sun. Now I can see when I first go in shops and can alsò see the plants in the outdoor section of Bunnings. That could prove expensive! Pity I cant see to do makeup any more and the latest wash ‘n go haircutContinue reading “New View”
Windy enough for waves on Lake Maquarie. Ten minutes from home. Now horizontal and very sore but invigorated from sun and fresh air and soothed by lapping waves.
Enough to say I have lost the knack but had the urge to make young Angela a burpday cake from scratch. My son aged 4 declared it was his burpday, and it has ststayed. Banana and walnut cake. Butter chocolate filling. Chocolate icing. Hours later. Gave up on the flowers as hands too jerky butContinue reading “Cake Making”
New shoots. End of time for others. Liquid fertilizer soaking in. Restful space. New hope
My young friend, angela, came up with this solution for unscrewing lids of all sizes. It is simply a piece of non-slip backing mat, super cheap and comfortable to hold. Works on all sizes from milk containers to tight jar lids that were really becoming a problem. It is also very flaxible so ciuld alsoContinue reading “Helpful Thingys”
Mapies like meat, so he is picking out the tasty bits from my leftover Chinese takeaway fried rice. I cant eat much at a time so he drops in around mealtimes. Magpies can attack in breeding season but this group seems to recognise us as part of the territory.
But as Lesley Gore sang “Its my party and I’ll cry if I want to.” Verbalising helps and I have had nice feedback from someone with PD who went “yes!” In recogntion at ome of my comments. We have weird symptoms and frustrations that well people cant comprehend. It is comforting to meet others whoContinue reading “This Blog is not a Pity Party”
Parkinson’s ìs a progressive illness. It is not a death sentence. You could die tomorrow by being hit by a car. It is not not nice to live with and the pregressive loss of control is scary. Although there is no recognized cure at the time of writing, tomorrow is another day, and YouTube isContinue reading “Future Hope”
Our local Bunnings between school hours tends to be inhabited by ‘traadies’ (tradesmen) in highh-viz tops and dark blue shorts over brown muscly legs ending in socks and worker boots……and retirees looking for parts for their projects or replacement liggt bulbs. And then there is me, and my shopping helper, Ebony, doing my fitness workout.Continue reading “Burning Round Bunnings.”
YouTube has some helpful videos to help overcome problems. Found this toďay.click here
I didnt know I had what Parkinson’s doctors call a ‘frozen face’ until my doctor remarked upon it. I had been complimented on my animated smile before. Now my face was stiff, my eyes almost glaring and I didn’t respond when I first tried to rise out of the chair in the surgery. My doctorContinue reading “My Frozen Face”
Yes I am one of those dreadful people who upload food photos, but my first attempt at gluten free dough worked surprisingly well and was crispy on the outside yet breadlike inside. Like proper pizza! Mozzarella, chicken, mushrooms, cherry tomatoes over Leggos stir- through garlic and tomato sauce instead of tomato paste. Not runny likeContinue reading “Gluten Free Pizza”
Back in bed but aforementioned goals achieved. Got so engrossed I forgot my 1pm Sifrol and by 4pm was wondering why inside was jittery and was feeling weird. Took med plus magnesium. I get very low on magnesium and vitamin D. Also take meds for low thyroid. Hashimoto’s Disease. But I finally got round toContinue reading “5.58pm and I have Crashed”
This is Neville. Or Neviletta. Part of the Aussie magpie family that lives in the village. This one almost talks to me sometimes. A tatty-looking older bird some times chases him off, like a cranky granny!
My bedroom is nice. It looks out on what I fancifully call my Italian courtyard. A work in progress. Pottiing up plants with a twisted arthritic spine is so painful. It goes through my ribs and into my abdomen like lava fire, then burns for hours till I lie down to settle the pinched nerves.Continue reading “Back to bed”
Top 2 photos courtesy of my friend Angela
Monday was my last visit for now to Rankin Park Hospital, but I am left feeling hopeful and more positive thanks to all the things I have learned. I will tell you more when I can lift the stylus without my arms really hurting. Ive had a busy and active day starting with my helperContinue reading “The Parkinsons Clinic”
Had my hair cut and tried my new spectacles Bit of a granny look, but I’m not Cher
Had to abandon my visitor and go lie down. Fortunately she understood and logged her laptop on to my wifi and internetted in peace. Now that is a great friend.
Comes with a warning: be careful of ordering with trembly fingers. I nearly ended up with 111 packs of twelve toilet rolls! Apart from that I find shopping online through Coles so much better than dragging round the supermarket, Especially for heavy items. I choose my delivery time and the driver not only carries inContinue reading “Online Parkiñsons Grocery Shopping”
Thanks for joining me! Good company in a journey makes the way seem shorter. — Izaak Walton Actually, good company is becoming harder to find. No, that is not correct. You are all out there I am just finding it harder to ģet to you. A few months ago I was finally diagnosed with ParkinsonsContinue reading “The Journey Begins”