I have been sending copies of my Bed Wars emails to my local MP, Pat Conroy to voice my frustration at the system. I have also forwarded on to him two emails I received from two women made homeless, each by putting a loved one into Aged Care and now coincidentally he has organised a meeting here in Newcastle with the ongoing Commission into Aged Care to allow ‘a limited number of people’ a chance to speak of their problems.
I have done my bit, but I will contact the lady who contacted me about being made homeless through having to put her husband in a care home, and the treatment she is still receiving. The problem is she seems so absolutely worn down by the situation I doubt she could make it, but I will enquire whether transport could be arranged for her. If she wishes me to go with her.
In my own case it has been pointed out to me that an adverse effect may come from people not understanding the need to spend our care package on items like an adjustable bed but for me it is a matter of life and death. Just because my bed is on order doesnt mean I will be sitting back, well I will actually. I am writing this lying down in bed which is mainly my usual writing mode. My new bed will prop me up and stop the pain in my neck and shoulders and back muscle spasms that comes from writing lying down (and Parkinsons etc).
Typing sitting up with a twisted and disintegrating spine is another story. I do know that just the four weeks stress of trying to get something through the system on my own made me very ill indeed. By ĺast Monday before the meeting I could hardly think where to find things to get ready. I was totally ill from stress and nothing would alleviate the pain. I didnt even think to make some of the famous medicinal apricot liquer (!) and I still havent done my online grocery shopping, instead ordering meals in from the village kitchen and Dominos pizza, having lunch while out with my carers. Dont worry I havent starved!
But I can identify if many people will be totally unable to get in to the Commission and fight. Aĺl the fight has been knocked out of them.
But I am seeing Pat Conroy, our local (Labour) Member of Parliament as a bit of a hero and that is a first for a politician!
Here is a clearer link to details of the meeting Go to Newcastle Herald click here